I worked with dementia patients for years and always feel for the families; you lose your mom twice in the end -- first to this disease, and then, almost as a relief -- to death at some point. My heart is with you and I hope that you're able to find a support group or other means to help you through your own transitions. It gets easier for you mom now, so I'm glad you're choosing a little self-care for Carol. Hugs!
I understand a little of what you're dealing with. My mom's been gone three years, but the last five years of her life brought a huge decline in physical abilities, and numerous trips to MA from PA to stay with her after a hospitalization or rehab stay. It's hard to see them lose their independence -- harder still to watch them become bitter for all the changes. Will keep you in my thoughts and prayers in the days ahead.
On my bucket list to take a train ride through some of the more beautiful spots in America. Thanks for a great article with numerous positive points to consider!
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I know others who would totally agree with your piece....you're speaking for many, I believe. Maybe you should all leave and collectively start a women's commune of liberated caregivers. :)